Visual Snow Syndrome Resources updated March 2024

Updated MARCH 2024

This is a list of online resources for people with Visual Snow Syndrome. My goal is to keep this up to date!

Disclaimers: For some of these websites, I list key pages from the main website for quick access. I recommend visiting the main websites and exploring on your own to see for yourself everything they offer.

And, even though I am trying to have current information here, be sure to double-check publication dates!

General (What To Take To A Doctor)

• National Institute of Health, Rare Diseases: Visual Snow Syndrome (2020)

• National Organization for Rare Disorders: Visual Snow Syndrome (2018)

• The Visual Snow Initiative

  • VSS Diagnostic Criteria with Downloadable PDF

• U.S. National Library of Medicine: Current Clinical Trials (Also shows studies in other countries!)

• Wikipedia “Visual Snow” (2021)

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Listed by Country (Alphabetically)

Europe / Netherlands

• Visual Snow Syndrome Europe

Germany / Deutschland

• Visual Snow Syndrome Germany

United Kingdom

• The Visual Snow Foundation

  • VSS List of Symptoms

  • VSS Forums

United States of America

• Eye on Vision Foundation

  • VSS Resources

  • Research & News

  • How to Help Linktr.ee

• National Institute of Health, Rare Diseases: Visual Snow Syndrome (2020)

• National Organization for Rare Disorders: Visual Snow Syndrome (2018)

• The Visual Snow Initiative

  • VSS Diagnostic Criteria with Downloadable PDF

  • List of Doctors & Specialists by The VSI

  • The VSI Youtube Channel